Neonatal Alloimmune Thrombocytopenia (NAIT) Parents

Coming soon... we hope to start a support group for parents dealing with Neonatal Alloimmune Thrombocytopenia (NAIT) to share information and provide support.  Our hope would be to provide a destination where parents (and doctors and researchers are welcome, too,) can openly share and debate information about the best and safest NAIT practices and treatment available, recommend doctors (or ones to avoid), hospitals, home IVIG services, help and support other NAIT parents, etc., with the guiding principle always being what is best for the NAIT babies and parents based on research, science and logic.  We caution all NAIT parents to be wary of any site or group that promotes a specific doctor or protocol that is not achieving the best results possible for your baby.  Good intentions or fondness of a doctor matter little if they do not lead to a healthy baby.  Similarly just because an older doctor may have more experience does not mean they achieve better results, especially if they are using outdated methods.  Whether our future group or another, we always suggest and welcome parents to ask if the protocol being recommended has failed in the past and any information related to risks or success rates.

 

Please register on our Contact Us page if you would like to be notified when we launch the NAIT support group (plus we always enjoy meeting other NAIT parents.)